SIDS & Social Networking

Liberty

In the 40 years since the National SIDS Act of 1974, rates of child mortality from Sudden Infant Death Syndrome has decreased by around 50%. In Dr. McEntire’s SIDS: Historical Perspective http://sids.org/about-us/sids-historical-perspective/ she points out the three most prominent “modifiable risk factors such as tobacco exposure, prone sleep and more recently bed sharing.” These factors are echoed by the WHO by saying: “More recently studies have controlled for a number of potential confounders, especially birth weight and socio-economic status. As smoking reduces birth weight, controlling for birth weight inappropriately reduces the relative risk of SIDS (i.e. over control) observed for smoking” cited in the study http://www.who.int/tobacco/media/en/mitchell.pdf, as well as “In fact, the only risk factor for both SIDS and suffocation is one in which the sleeping infant is exposed to a foreign entity that is able either to block the infant’s airway (suffocation) or cause an extra source of heat for the baby (SIDS). Bed-sharing or heavy pillows or blankets are 2 examples of this. A too-soft bed for a much younger infant can also be added to this risk factor.” said Dr. Lewak in his Letter to the Editor of the American Academy of Pediatrics in 2012 http://pediatrics.aappublications.org/content/130/5/e1389.1.full
Abnormalities surrounding serotonin production in the brain-stem which controls many autonomic functions such as respiratory systems & heart rate, has also been linked as a contribution to SIDS. http://jama.jamanetwork.com/article.aspx?articleid=185314

The Centers for Disease Control has a list of 6 different organizations to aide in bereavement http://www.cdc.gov/sids/parents-caregivers.htm which leads to resources Including books on the subject, such as http://www.centering.org/index.php?page=book&id=17 The CDC further links The CJ Foundation for SIDS which offers a “free bereavement packet, including the book, SIDS and Infant Death Survival Guide” by filling out this on line form. http://www.cjsids.org/about-us/contact-us.html
Additionally the CDC links to The Compassionate Friends which offers support groups, it’s chapter locator can be accessed here http://www.compassionatefriends.org/Find_Support/Chapters/Chapter_Locator.aspx. Grieving Families is “A Program of First Candle funded in part by the Maternal and Child Health Bureau, Health Resources and Services Administration, U.S. Department of Health and Human Services” which offers counselors 24 hour, 7 day a week at 1-800-221-7437 http://www.firstcandle.org/grieving-families/. The MISS Foundation & Share groups have similar services as the last 2 groups mentioned, which can be found here http://www.missfoundation.org/support/programs/familypackets & here http://www.nationalshare.org/support-resources.html, respectively.

Joining Runs & Walks are other great ways to raise awareness as well as raise money through sponsorship &/or collecting donations. While May 9, 2014 was the date of the Spring-for-SIDS day http://www.springforsids.org/ it is still always possible to donate here : https://sids.org/ways-to-help/donate/. Additionally if you are in the St. Louis, MO area, you could attend The Share Walk for Remembrance and Hope at Creve Coeur Park on the October 18, 2014. Please register here http://www.nationalshare.org/walk.html

Internet social networking is certainly the easiest way to spread information. Sharing this blog or any of it’s many links is a way of taking action as well, by saving the lives of children through the education of expectant parents. Twitter, Facebook & many other social networking sites each have search engines as well, to help link with other parents & groups for sharing & mutual comfort.

With love this was written in dedication to Liberty Eris Randazzo whom was born 1/10/2014 and died from SIDS a short 13 days later on 1/23/2014.

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